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It is currently pending adoption by Congress.10 Article 2 of the bill provides for: (a) Developing and implementing a national registry; (b) Developing the range of health-care products and encouraging the practice of self-care; (c) Organizing the flow of health care; (d) Defining the epidemiological profile; (e) Training and building capacity among staff in the Unified Health System so that they can address the various aspects of health care of persons with albinism; (f) Improving integrated health care for persons with albinism. (...) The Ordinance aims at ensuring the universality, completeness and equity of health care for persons with rare diseases in order to reduce morbidity and mortality, to establish care plans at all levels of the health-care system, to ensure comprehensive health care for persons with rare diseases in the health-care network, and to ensure that persons with rare diseases have timely access to diagnostic and therapeutic resources. 23. (...) The Independent Expert was informed that life expectancy among persons with albinism could be as low as 33 years of age owing to an absence of timely and quality preventive and curative care for skin cancer. Based on recent research, the prevalence of skin cancer in patients enrolled in studies of the Pro-Albino Programme was 26 per cent, which is similar to that found in persons with albinism by researchers in Tanzania (25 per cent) and South Africa (23 per cent).26 The same research indicated that persons with albinism in Brazil tend to face similar prejudice and stigma to those experienced by their counterparts in African countries. 60.

Furthermore, the Ministry of Health, Community Development, Gender and Children is in the process of developing the national guidelines on health-care fee waivers for persons with disabilities to facilitate access to health care for such persons, including persons with albinism. 33. (...) One of the main partners of the Centre’s mobile operations is the non-governmental organization (NGO) Standing Voice. Its mobile skin-care clinics bring dermatologists to 33 sites in eight regions of the country every six months. (...) Furthermore, the hypervisibility and colouring of persons with albinism, along with the lesions that skin cancer often leaves on their skin, combined with a lack of general education on albinism, contribute to and strengthen the myths dehumanizing persons with albinism.

Owing to the lack of melanin in persons with albinism, they are particularly vulnerable to skin cancer. In Malawi, skin cancer is a life-threatening condition for persons with albinism as there are few facilities for adequate medical interventions. (...) In addition, free access to dermatological care for persons with albinism is necessary to ensure that skin cancer is detected early and treatment readily provided. 73. (...) The use of mobile clinics to ensure that persons with albinism in remote areas can be screened on a regular basis for skin cancer and vision assessment and care is a best practice established in the region.

., Suite 700, Washington, DC, États-Unis d'Amérique. 2.2 Pièces incorporées : 2.2.1 Les croquis numéro 92041-001, 'Head Form Assembly,' (30 novembre 1992); croquis numéro 92041-002, 'Skull Assembly,' (30 novembre 1992); croquis numéro 92041-003, 'Skull Cap Plate Assembly,' (30 novembre 1992); croquis numéro 92041-004, 'Skull Cap Plate,' (30 novembre 1992); TRANS/WP.29/GRSG/1999/4 page 3 croquis numéro 92041-005, 'Threaded Pin,' (30 novembre 1992); croquis numéro 92041-006, 'Hex Nut,' (30 novembre 1992); croquis numéro 92041-008, 'Head Skin without Nose,' (30 novembre 1992, modifié le 6 mars 1995); croquis numéro 92041-009, 'Six-Axis Load Cell Simulator Assembly,' (30 novembre 1992); croquis numéro 92041-011, 'Head Ballast Weight,' (30 novembre 1992); croquis numéro 92041-018, 'Head Form Bill of Materials,' (30 novembre 1992); croquis numéro 78051-148, 'Skull-Head (cast) Hybrid III,' (20 mai 1978, modifié le 17 août 1978); croquis numéros 78051-228/78051-229, 'Skin-Hybrid III,' (20 mai 1978, modifié jusqu'au 24 septembre 1979); croquis numéro 78051-339, 'Pivot Pin - Neck Transducer,' (20 mai 1978, modifié le 14 mai 1986); croquis numéro 78051-372, 'Vinyl Skin Formulation Hybrid III,' (20 mai 1978); croquis numéro C-1797, 'Neck Blank,' (1er août 1989); et croquis numéro SA572-S4, 'Accelerometer Specification,' (30 novembre 1992), sont disponibles à l'adresse suivante : Reprographic Technologies, 9000 Virginia Manor Road, Beltsville, MD 20705. 2.2.2 Un mode d'emploi intitulé 'Free-Motion Headform User's Manual', version 2, de mars 1995, peut être obtenu auprès de la NHTSA's Docket Section à l'adresse indiquée au paragraphe 2.1 de la présente section. 2.2.3 La U.S. (...) TRANS/WP.29/GRSG/1999/4 page 5 3.2.4 Laisser tomber la fausse tête de la hauteur spécifiée par un moyen qui garantisse une libération instantanée, sur une plaque d'acier carrée horizontale plane, solidement supportée, d'une épaisseur de 51 mm et de 508 mm de côté.

This in turn leaves most of them un-skilled and un-equipped for jobs and relegates them to menial work, including jobs that expose them to the sun and subsequently to skin cancer. In other cases, the vision impairment of persons with albinism has led to the assumption that they are all visually impaired. (...) This is highly commendable, given that skin cancer is the number one killer of persons with albinism in Sub Saharan Africa. (...) On the right to the highest attainable standard of health care, the Commission recommends that the government, should establish programmes to support initiatives for producing sun protection cream locally, facilitate free or low cost skin cancer treatment across the country for persons with albinism and provide free or low cost visual aids to enable persons with albinism to participate fully in all spheres of life. 8.

It should also be noted that petroleum substances (hydrocarbons in general) may cause defatting of the skin, leading to skin dryness and cracking. It is advised to include appropriate warnings on the SDS. (...) For petroleum substances containing PAHs, the skin carcinogenic potential is related to the level of specific 3-7 fused-ring PAHs. (...) In addition, where possible laboratories accredited by the Association for Assessment and Accreditation of Laboratory Animal Care (AAALAC), or equivalent organisations, for excellence in animal care should be used.

Include colour as a prohibited ground of discrimination. 3 Health Care workers and midwife training State & all stakeholders I to M Train on albinism and early intervention particularly linked to vision impairment and skin cancer (including preventive and curative measures). (...) Include PWA in disability policy and benefits. 3 Skin cancer : access to adequate health care State I to L Provide system wide distribution of sun protection creams and provide cancer, and pre-cancer treatment at no cost. Reimburse cost if distance to care is far from residence. Ensure no standing in the sun for school, work or access to government services.

La viande contiguë à l’ilion (sot-l’y-laisse) peut ou non être enlevée. 71103-21 Sans os, avec peau, couleur non spécifiée 71103-22 Sans os, sans peau POULET ��� ���������������� ������� �������� ��� Un «haut de cuisse désossé découpé en carré» est obtenu à partir d’une cuisse entière (71001) par une coupe à la jointure du tibia et du fémur. (...) Le haut de cuisse désossé découpé en carré est constitué par la viande du haut de cuisse coupée de façon à former un carré. 71104-21 Sans os, avec peau, couleur non spécifiée 71104-22 Sans os, sans peau POULET ��� ���������������� �SÉ PARÉ ET DÉCOUPÉ EN CARRÉ Un «haut de cuisse désossé paré et découpé en carré» est obtenu à partir d’une cuisse entière (71001) par une coupe à la jointure du tibia et du fémur. (...) Le haut de cuisse désossé paré et découpé en carré est constitué par la viande du haut de cuisse coupée de façon à former un carré. 71105-21 Sans os, avec peau, couleur non spécifiée 71105-22 Sans os, sans peau POULET ����� � Un «pilon» est obtenu à partir d’une cuisse entière (71001) par une coupe à la jointure du tibia et du fémur.

The other key physiological consequence is vulnerability to skin cancer, which is fatal when left untreated. (...) Entry points include training modules on disabilities, on rare conditions and diseases and on skin conditions, and primary health-care services. (...) At school, poor vision, skin problems, social exclusion and lack of appropriate accommodation impede their progress. 59.

The most common and visible type is oculocutaneous albinism, which affects the skin, hair and eyes. Within this type, subtypes reflect varying degrees of melanin deficiency in an individual. (...) Owing to the lack of melanin in persons with albinism, they are particularly vulnerable to skin cancer. In Mozambique, as in various countries of the region, skin cancer is a life-threatening condition for persons with albinism because there are few facilities for adequate medical interventions. (...) Further, the use of mobile clinics to ensure that persons with albinism in remote areas can be screened on a regular basis for skin cancer is a best practice established in the region. 57.