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REPORT OF THE INDEPENDENT EXPERT ON THE ENJOYMENT OF HUMAN RIGHTS BY PERSONS WITH ALBINISM : NOTE / BY THE SECRETARIAT
Information was received from the non-governmental organization Kilimanjaro Sunscreen (KiliSun) and the Kilimanjaro Sunscreen Production Unit, United Republic of Tanzania. (...) For instance, participants at the first Fiji Albinism Awareness Symposium, held in 2015, observed that vision aids and sunscreen were not generally available for children in village schools. 45. (...) A/HRC/37/57 14 such as sunscreen, that would protect them from the elevated risk of developing skin cancer.
Language:English
Score: 1600858.2 - https://daccess-ods.un.org/acc...get?open&DS=A/HRC/37/57&Lang=E
Data Source: ods
VISIT TO BRAZIL :REPORT OF THE INDEPENDENT EXPERT ON THE ENJOYMENT OF HUMAN RIGHTS BY PERSONS WITH ALBINISM, IKPONWOSA ERO
She also notes that the Municipality of Salvador has been distributing sunscreen free of charge to persons with albinism since 2006. 43. (...) The Independent Expert recommends that more effort be made to ensure that sunscreen is accessible to those who need it. 78. (...) Nevertheless, the Independent Expert was also informed that sunscreen had to be collected in the city centre.
Language:English
Score: 1594680.1 - https://daccess-ods.un.org/acc...en&DS=A/HRC/46/32/ADD.1&Lang=E
Data Source: ods
REPORT OF THE INDEPENDENT EXPERT ON THE ENJOYMENT OF HUMAN RIGHTS BY PERSONS WITH ALBINISM ON HER MISSION TO THE UNITED REPUBLIC OF TANZANIA : NOTE / BY THE SECRETARIAT
The programme consists of an awareness-raising component, a full screening for precancerous lesions on persons with albinism, cryogenic treatment where necessary, the distribution of sun hats and sunscreen and referrals for surgery. Clinic outreach is carried out with the support of the Tanzania Albinism Society, and the Centre’s dermatologists provide treatment. (...) A/HRC/37/57/Add.1 10 50. The sunscreen distributed through mobile clinics, KiliSun, is the first of its kind in the region. (...) It avoids the cost and delays associated with imports and ensures that the sunscreen is distributed well before its expiry date, which is not always the case with imported sunscreen. 51.
Language:English
Score: 1492488.8 - https://daccess-ods.un.org/acc...en&DS=A/HRC/37/57/ADD.1&Lang=E
Data Source: ods
ALBINISM WORLDWIDE :NOTE / BY THE SECRETARY-GENERAL
In Malawi and Namibia, sunscreen products are on the Ministry of Health ’s list of essential drugs, and free sunscreen is provided in public hospitals in South Africa. (...) In addition, most of them are poor and cannot afford to buy sunscreen or sun-protection clothing.28 53. In Japan, persons with albinism who have high visual acuity are often not recognized as having a disability. (...) In Turkey, there is limited access to psychological support and assistive devices such as visual aids, sunglasses and sunscreen for persons with albinism. 52 Sunscreens are not commonly subsidized or covered by public health insurance. 53 Even in private insurance programmes, skin and eye care coverage is often not included in policies for persons with albinism.
Language:English
Score: 1484846.3 - https://daccess-ods.un.org/acc...sf/get?open&DS=A/74/190&Lang=E
Data Source: ods
RIA) TRANSPARENCY (e.g. consultation, online publication) EVIDENCE + TRANSPARENCY 9 Stakeholder submissions Regulator review of submissions Regulator/ Stakeholder Event Work Plan Development and Implementation Technical/Expert Working Groups RCC Secretariat Canadian-US department Canadian-US department Canadian-US department TBS OIRA Central oversight body Life-cycle approach RCC: Formal regulatory cooperation GRP underpins the RCC’s approach to regulatory cooperation SINGLE WINDOW MONITORING & COORDINATION RCC: Results 3 Common Electronic Submission Gateway Sunscreen Inspection Pilot Energy efficiency standards What: Companies can submit information about a health product market authorization once for both countries Benefit: $22 million of savings for the pharmaceutical industry over 10 years Trust in regulatory processes and the RCC’s adoption of GRP has contributed to concrete benefits to both Canadians and Americans What: U.S. sunscreens enter into Canada without being quarantined and tested for a second time at the border Benefit: $100,000 annually of savings per sunscreen for the consumer health product industry What: Harmonized standards for products such as refrigerators and air conditioners Benefit: $1.8 billion of savings in energy costs by 2030 for Canadian consumers, and $1.5 million per year for manufacturers LIFE-C YC LE A P P R O A C H TR U ST IN R EG U LA TO R Y P R O C ES SE S Next-steps for Canada 3 Canada-United States Regulatory Cooperation Council (2011) Canadian Free Trade Agreement- Regulatory Reconciliation and Cooperation Table (2017) Canada - European Union Comprehensive Economic and Trade Agreement- Regulatory Cooperation Forum (2017) Status: Identifying opportunities for new initiatives (41 stakeholder submissions) Status: Identifying potential barriers for reconciliation (26 federal submissions) Status: Consulting stakeholders Draft Cabinet Directive on Regulation (2018) Trade negotiations (e.g.
Language:English
Score: 1484580.7 - https://www.wto.org/english/tr...top_e/tbt_e/canada_mar18_e.pdf
Data Source: un
PROMOTION AND PROTECTION OF ALL HUMAN RIGHTS, CIVIL, POLITICAL, ECONOMIC, SOCIAL AND CULTURAL RIGHTS, INCLUDING THE RIGHT TO DEVELOPMENT : WRITTEN STATEMENT / SUBMITTED BY STANDING VOICE
This is particularly the case in the hot climates of sub-Saharan Africa, and is even more likely when people with albinism are marginalised from healthcare, unable to access sunscreen or regular skin examinations. Certainly in the countries where we work, we have seen systemic social exclusion and an equatorial climate combine to exacerbate melanin deficiency and produce a skin cancer crisis among people with albinism. (...) The programme currently reaches 5,362 patients at 49 locations across both countries, with each clinic providing skin cancer screening, liquid nitrogen cryotherapy, preventative education, sun-protective clothing, surgery referral where necessary, and a regular supply of sunscreen. In Tanzania, this sunscreen is specifically made for people with albinism and produced locally in Moshi.
Language:English
Score: 1478591.8 - https://daccess-ods.un.org/acc...pen&DS=A/HRC/40/NGO/181&Lang=E
Data Source: ods
Slip on a shirt, slop on sunscreen and slap on a hat! Avoid being outside during midday hours! (...) Sunscreen should never be used to prolong the duration of sun exposure. (...) UV radiation exposure is cumulative during the day. Sunscreens protect me so I can sunbathe much longer.
Language:English
Score: 1461870.9 - https://www.who.int/uv/publications/en/UVIGuide.pdf
Data Source: un
PROMOTION AND PROTECTION OF ALL HUMAN RIGHTS, CIVIL, POLITICAL, ECONOMIC, SOCIAL AND CULTURAL RIGHTS, INCLUDING THE RIGHT TO DEVELOPMENT :WRITTEN SUBMISSION BY THE NATIONAL COMMISSION ON HUMAN RIGHTS OF KENYA : NOTE / BY THE SECRETARIAT
National Persons with Albinism Sunscreen Support Programme that provides sunscreen lotions to about 3,000 persons with albinism in Kenya.
Language:English
Score: 1405936.4 - https://daccess-ods.un.org/acc...t?open&DS=A/HRC/40/NI/6&Lang=E
Data Source: ods
SOCIAL DEVELOPMENT CHALLENGES FACED BY PERSONS WITH ALBINISM : REPORT OF THE SECRETARY-GENERAL
Protective practices consist of sun avoidance, wearing protective clothing and wide -brimmed hats and applying high-protection sunscreen. Early health advice by nurses and midwives, awareness- raising on the harmful effects of ultraviolet radiation and on sun protection options and regular preventive dermatological consultations all play an important role in preventing skin cancer. (...) The information available on the practices of persons with albinism with regard to sun protection focused largely on the situation in sub -Saharan Africa. It shows that sunscreen is not widely available there, is often unaffordable and it is often not on the national list of essential medicines. When affordable sunscreen is available at local hospitals, the cost and time involved in travelling to collect it deter many families.
Language:English
Score: 1395935.5 - https://daccess-ods.un.org/acc...sf/get?open&DS=A/72/169&Lang=E
Data Source: ods
SOCIAL DEVELOPMENT CHALLENGES FACED BY PERSONS WITH ALBINISM: REPORT OF THE SECRETARY-GENERAL
Without access to dermatological screening and sunscreen lotions, there has been a marked deterioration of skin conditions among the albinism community, with a high number of cases of skin cancer reported in several countries. 25. (...) In particular, they must ensure the continued supply of sunscreen lotions and access to dermatological and ophthalmological screening and treatment and to visual assistive devices. (...) They must ensure the accessibi lity of sunscreen lotions and eye care services at all times for persons with albinism, notably by making it free of charge or at reduced cost for them.
Language:English
Score: 1350397.8 - https://daccess-ods.un.org/acc...sf/get?open&DS=A/76/769&Lang=E
Data Source: ods